I Have a Rare Condition that Prevents me from Having a Normal Life

condition

What do you think is the Biggest Challenge with a Condition like this? What was YOUR biggest Challenge? Tell us in the Comments!

My condition is not one of the choices and I’m not surprised because it’s not very common and most people have not heard of it before including doctors.

My condition is called ichthyosis. Which means I severe dry skin. All over my body but you see it the most on my hands and feet.

Read more: My Skin Condition Put Me Through Hell

It gives me a dry scaly look on my body and I have to take up to 5-hour baths to soak and then scrub it off. Cold weather does harm to the skin. As well the sun itself.

I can not stay in the sun too long or do anything that would require me to sweat because I do not sweat. My dry skin covers up my pores and my face just turns red as a tomato.

If I am out in the sun too long, I may overheat causing me to faint and it takes twice as long to cool down. I have medicine to help take the skin off, but when I cannot afford it, it gets very dry and tight on my actual skin that it hurts to do even a little bit of movement!

Read more: Journey To Conquer Eczema

There is no cure for me. It is genetic.. but I’m still hopeful that one day, someone will find a cure so I can have normal skin and do normal activities like everyone else.

What do you think is the Biggest Challenge with a Condition like this? What was YOUR biggest Challenge? Tell us in the Comments!

2 COMMENTS

  1. You have to be careful taking long baths as it can be detrimental to your skin. Shorter baths with lukewarm water works best. Not as relaxing I know but better for your skin.

  2. I’ve been dealing with plack psoriasis for 8 years and I’m 50 and I’ve tried everything from injections to pills to lazer treatments nothing works embarrassed to take my shirt off it’s not fair and in this day and age no cure makes no sense

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