What was your journey with the Migraines? Share to show your Support!
In Part 4, I was talking about my struggle with migraines before 2014. Even now when 2014 is long gone, I am still trying to get an understanding and help for my fibromyalgia and migraines. During 2014 I was going to the doctors one to two times a month with no results and just feeling like a guinea pig. I was at the point of giving up and not going to the doctor and even lost my job. It was the low of the low.
I had no job, felt awful and was not sure what to do. In 2015 I got a job and my boss told me after couple months, “we notice you don’t feel well, do you need some time off?” I was thinking that it will be another job that I am going to lose because of the fibromyalgia and the migraines. I explained the situation and they did understand at first. Days to a few months go by and once again I get maybe “you should head home, you don’t look good even other people are worried about you, we got your work covered.” I have only been at this job for 4 months.
Read more: New Life with Migraines – Part 6
I got a lumbar puncture (spinal tap) and even though it went well, the result was not good. I have told the doctors everything I have going on and it was much worse than before. I couldn’t get out of my bed, my head was on fire with the migraines, couldn’t see, and just cried (and even that hurt). I called the doctor and he told me to drink water and it should be ok. It was not good even a week later. I wake up to one side of my face sloped and I couldn’t even talk.
I call again and asked why my face was like that and they said to call my other doctor. The other doctor said to come in tomorrow to see what is going on. At this point, I wanted to scream, cry, hurt, and stop the pain. I called my parents, they were not sure what to do. My mom knew what it was – Bell ’s palsy. The only way to help it is with steroids and time with massaging the face or movement. The doctors don’t tell you about the side effects or how it can cause more issues than solvents. They don’t label one major issue of a side effect in getting Bell’s palsy and how this is one more thing to add to my health issues.
After taking the steroids I was prescribed and everything I could try to help, I still lost feeling in that side of my face, lost my hearing on one side, and I will never get them back. You think the doctor would take responsibility for this – nope, all I got was this try the lumbar puncture (spinal tap) again and see if it helps. Really doc, really you, I was thinking you want me dead or you are not listening to anything me and my family tell you about what happened. After all the MRI’s, CT scans, and more the doctors want they did not want to listen to the results of loss or health issues I have.
Read more: Getting Tired of The Migraines
I ended up getting more doctors for the hearing loss and changed to another doctor because of the complications of the tests. At this point, I didn’t want to be a guinea pig anymore. With changing my doctor you would think it will be easier, but instead, it is much harder. That doctor did not care about getting a referral to change. It took 10 months of hell and more tests once I was seen. In part 6, I will supply info on my journey of this hellish couple and current years (that including 5 concussions).